H.R.1554 - Christopher and Dana Reeve Quality of Life for Persons with Paralysis Act109th Congress (2005-2006)
Summary: H.R.1554 — 109th Congress (2005-2006)
Passed House amended (12/09/2006)
Christopher and Dana Reeve Quality of Life for Persons with Paralysis Act - Permits the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to study the health challenges associated with paralysis and other physical disabilities and carry out projects and interventions to improve the quality of life and long-term health status of individuals with such conditions. Provides that such activities may include: (1) development of a national paralysis and physical disability quality-of-life action plan; (2) support for programs to disseminate information involving care and rehabilitation options and quality-of-life grant programs; (3) establishment of a hospital-based registry and the conduct of relevant population-based research on motor disability; and (4) development of programs, services, and demonstrations designed to support and advance quality-of-life programs for persons living with paralysis and other physical disabilities.
Allows the Secretary to award grants for activities related to paralysis, including to: (1) establish paralysis registries; (2) develop comprehensive paralysis and other physical disability action plans; (3) coordinate paralysis and physical disability activities with existing state-based disability and health programs; (4) provide education and training for health professionals and allied caregivers; (5) develop, test, evaluate, and replicate effective intervention programs to maintain and improve health and quality of life; (6) disseminate information to the public; (7) improve access to services for persons living with paralysis and other physical disabilities and their caregivers; and (8) test model intervention programs to improve health and quality of life.
Sets forth reporting requirements.
Expresses the sense of Congress that: (1) as science and research have advanced, so too has the need to increase strategic planning across the National Institutes of Health (NIH) to identify research that is important to the advancement of biomedical science; and (2) research involving collaboration among NIH national research institutes and national centers is crucial for advancing research on paralysis.