H.R.2202 - National Bone Marrow Registry Reauthorization Act of 1998105th Congress (1997-1998)
Summary: H.R.2202 — 105th Congress (1997-1998)
Passed House amended (05/19/1998)
National Bone Marrow Registry Reauthorization Act of 1998 - Amends the Public Health Service Act to set forth the purpose of the National Bone Marrow Donor Registry and impose requirements regarding its board of directors.
Sets forth program functions, including regarding collection, analysis, and publication of data on donor searches.
Mandates implementation of a plan to effectuate efficiencies between the Registry and donor centers.
Requires the Registry to: (1) recruit donors; (2) give priority to recruiting populations underrepresented among potential donors; and (3) consider racial and ethnic minority groups underrepresented.
Requires the Registry to maintain an office of patient advocacy meeting specified requirements, including providing case management. Allows the office to provide information on the process of receiving a bone marrow transplant, including the posttransplant process.
Mandates maintenance of a scientific registry regarding patients who have received marrow from an unrelated donor.
Authorizes appropriations to carry out the Registry provisions.
Mandates a study of the Registry and report to the Congress by the Comptroller General regarding specified aspects of the Registry.
Directs the Secretary of Health and Human Services, by a specified period after the effective date of this Act, to ensure that the office of patient advocacy (mandated by this Act) is in compliance with certain requirements.